Sorry, i know, the last time i took him to a park there was some kids that told him he looked like a monster
So And he hadn’t been back to that park ever since.
So i had to tell him that he, i have to.
I had to tell him that he’s not a monster, he’s just.
He’s just been through a lot.
He goes to a lot.
Hey, i’m already, hey, doing okay.
Yeah, Okay, you ready for some lunch.
I actually knew when i was um pregnant with him that it was like a 50: 50 chance that um he would come out with his genetic condition.
Lamar has condition called nf type 1, which is incurable and which causes tumors and causes tumors throughout his skeletal and um nervous system.
So it just caused a lot of problems throughout his body, which the gross can come up anywhere on his body.
Amari has one of the worst cases that you can get.
So he was taking chemo medicine for a while and it seemed to help a little bit, but he’s not been on it for a year or so just to see how the tumors act and put it on there.
So this year we probably have to start him back on some kind of chemo medicine, because it looks like they’re starting to grow back, grow a little more and faster.
It’s a lot it really is.
As he got older, it got more noticeable because the tumors grew.
Um, i’m trying to not be getting emotional.
It was hard.
It was very hard when i found out: okay,
Okay, it’ll be done in just a minute.
Oh, maurice, he’s like any other um young boy.
His age it just.
He has limitations of things that he can and can’t do.
His vision is very, very limited.
He only can see how the right eye, which is barely, which is kind of covered up his right eye as well because of the tumors.
So it makes it hard for him to do certain things.
Like: he loves football, but he really can’t get out there and play like everybody else because of his tumors.
But he, he really doesn’t act like he have a genetic condition or anything, because i look at him as a normal child.
2017, Amari got to meet the Harlem Globetrotters in Huntsville, Alabama, and he got a autographed jersey and a basketball as well.
But he had a great time that day.
He really did.
He smiled the whole way there and all the way home.
I was overjoyed because he, he still talks about it to this day- to pull the tape up.
Okay, So you can eat.
We’re getting ready for um Ej and Louis and Marc’s cousin to come over.
When they come over, we’re gonna, um, probably go to the park somewhere and let them just have some fun together and spend some time together at the park.
Hey, babies, hey, my loves, look at that now, pray that something can be done.
It’s hard, it really is.
You know what jacket you gonna wear, Amari?
He mostly plays with his two cousins, so he really doesn’t really get a whole lot.
We just like to have fun with our, our family and her cousin.
Amara, i know his genetic condition.
I like hanging out with just the same.
I like hanging out just the way he is.
That doesn’t seem any different.
I know the last time i took him to a park, there was some kids that told him he looked like a monster.
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