Understanding Prader-Willi Syndrome: Prader-Willi Syndrome is a rare genetic disorder affecting hunger regulation, leading to constant feelings of hunger and potential weight-related complications. Holly sheds light on the daily struggles, recounting how Harlow, despite consuming a full meal, expresses immediate hunger, a challenge Holly manages with patience and understanding.

Overcoming Weight Challenges: Harlow’s weight, about 44 pounds heavier than the average five-year-old, is a testament to the difficulties posed by PWS. Holly shares her efforts to ensure a balanced diet for Harlow while acknowledging the occasional treats to maintain a sense of normalcy. Despite the challenges, Holly remains determined to provide Harlow with a fulfilling and enjoyable childhood.