This young boy spent 15 years with the skin, which is unusual.
If you are not close enough, you might think this is a tattoo or a certain cloth, but no, this is how the skin looks like.
Due to this illness, many people have bullied this young boy, saying he has a skin like that of snakes or frogs, that he even have scales like that of a fish and many more.
Due to this condition, it’s difficult for the boy to fall asleep.
He spends the rest of the night scratching the skin.
Francoise is the mother to the boy.
She says she produced the boy back in 2006 and by then the baby boy looked healthy.
Until when the baby turned six months, he brought what looked like a skin rash.
They considered it to be a normal skin rash, but the way it went on spreading to one part of the body proved doubters that it was more than just a normal skin rash.
The skin condition kept covering many parts of the body until one day when he woke up and looked like someone with tattoos on the whole body.
After seeing the boys body- my serious transformation into such a brand new something- the mother was worried but put more hope at the hospital.
The boy was examined, but, to everyone’s disappointment.
The mother was told the baby tests negative.
Doctors were not able to figure out what kind of illness this was and there are some people who saw this situation and said there is kind of medical lotion which the boy can apply on his body so as to have a normal skin.
These people suggested that it could take a lot of money, since the lotion was to be bought in a neighboring country.
They all had no money and said: only God can intervene.
The mother says she was given medicine.
It looked as if it was the solution they needed, but these two did not last.
The boy recovered, but only for two weeks.
Later the skin abnormality returned.
It looked even worse than before.
This is what led to the boys bullying and trolling that the mother does not recall.
All she knows is that there were a lot of negative comments from here.
The mother told the boy that he has to always put on a coat, a sweater or even a hood every time going in public so as to reduce being bullied, and due to this reason he cannot leave the house without wearing something covering the whole body, and the boy is not allowed to go on too much sunshine due to his skin condition because the sun’s light rays always burn the boy and make it worse than it is.
She says the boy faced a lot of consequences due to the skin abnormality.
Apart from the skin, the boy also has hearing problems.
The mother says sometimes the boy is unable to hear and you have to speak louder.
She says the boy’s hearing is always variating in a waveform.
One day years are functioning very well.
The next day ears are not functioning at all.
He’s called Daniel.
He’s the father to this 15 year old boy.
As parents, the father says they did everything they could so as to take their boy to the hospital, but then they ran out of money.
Failure to provide treatment necessary saw the boy’s illness increase and this increased bullying towards the boy.
The boy was always bullied, to the extent that he got ashamed of interacting with other children of the same age.
After parents saw this, they wanted to put an end to the boy’s bullying by helping him to get treatment, but had a small budget that came to an end and they ended up not achieving the treatment goal.
He confirms that they are sure.
With advanced medicine the boy’s skin can be treated, having given the boy some medicines a few years ago and he had started recovering but later suffered.
The skin abnormality again shows that with availability of enough money, the boy can come to a normal life.
He says there are medications doctors recommended for the boy to take, but they said, since they don’t have enough and medicine is a bit too costly, he says they need an extra support.
They cannot do this alone, because they tried and failed.
Both the mother and the father are worried about their 15 year old.
They say they know how this illness makes the boy uncomfortable and they will do whatever possible and save the boy.
They’re afraid that without treatment, this condition might result into something else like skin cancer or even something worse- death.
This boy has spent a lot of years failing to sleep because of the skin disease.
Parents say that whenever the sun sets and the night starts, the boy’s skin becomes more painful, that there is no way he can sleep while feeling this pain.
Due to this reason, the boy has spent many years without falling asleep and during his time in class he’s always dozing and teachers would have chased him away.
But because they’re well aware of the boy’s situation, as they let him study as much as he can, this illness has brought a sense of loneliness to the boy.
He cannot interact with other children and he spends most of his time inside to avoid sun rays.
At one point the father sees the boy having depression, all because no one shows some love apart from parents.
When bathing, the boy has to use only hot water, as recommended by doctors.
These parents have to make sure he gets hot water every day, right.
The boy also tells us in his own words how everyone at school is always avoiding his presence because they’re afraid that this illness might be contagious.
These parents all have one wish: they need support, since they did everything they could, but it was not enough.
They’re requesting money to cover the boy’s medical bill.
You can help the boy to get advanced treatment by contributing via a government link found in description and pinned in top comments.
Thank you for watching.
I’m Elijah, and this is Afrimax English.
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